The foundation explains that for every 1,000 euros raised, 10 children can be diagnosed, 15 people can be trained as temporary caregivers and research teams can be funded.
Adventure and solidarity. That is the proposal of Rafting Murcia, which has organised a descent of the Segura River to benefit the Dravet Syndrome Foundation. The event will be held on 29 May, in Cieza, from 9.30 am to 1.30 pm, and those interested can register by calling 636 385 053. The foundation explains that for every 1,000 euros raised, 10 children can be diagnosed, 15 people can be trained as temporary carers, and teams of researchers can be funded to test 25 new drugs in laboratories to combat this disease.... Dravet Syndrome, also known as severe myoclonic epilepsy of infancy (SMEI), is a disease of genetic origin and its age of onset ranges from 4 to 12 months of life, and is characterised by clonic seizures.
Source: laverdad.es